THE donation campaign for baby Metehan has now reached it set a goal of £1.9 million, over the last 5months Metehan’s parents Tuncay and Zeliha Fidan, who live in Leicester have been campaigning to raise money for the life-saving Zolgensma therapy Metehan needs.
Baby Metehan has Spinal muscular atrophy (SMA) is a rare genetic condition that makes the muscles weaker and causes problems with movement. Type 1 is the most severe form and symptoms develop very early and cause death usually before the baby reaches two.
Tuncay and Zeliha Fidan, who noticed their children’s illness when they were only 5 weeks old, keep the baby under surveillance for 24 hours in the hospital where Metehan was hospitalized. Since then his is under continues medical care and equipment.
In November baby Metehan turned 1 and the rise against the clock to raise money for the treatment saw members of the Turkish Speaking Community across the UK, as well as people, seeing his campaign donations. From Germany, Turkey, France, Belgium and the Netherlands donation came with famous footballer Mesut Ozil and Cenk Tosun also picking up onto his campaign.
In a social media post shared on Tuesday 12 January, they said “METEHAN WON, THANK YOU TO EVERYONE WHO SUPPORTED AND DONATED, 100%”
Metehan’s father Tuncay Fidan said: ‘‘ We have been running a campaign for our son for about 5 months. We have reached the end of this campaign by reaching our goal. We are very happy, it has been serious struggle has been waged to achieve this goal. We sincerely thank everyone, and we are very grateful to everyone who contributed, donated, shared and supported us in this campaign. We have very strange feelings. We want this process to be completed as soon as possible and Metehan to have his medicine. We want to experience the next process, we will share them with you altogether. Thank you very much again, you have two, it is good that you were with us and believed in us. ”
Many non-governmental organizations such as Luton Turkish Education and Culture Center, Luton Turkish Youth Branches, Leiscester Turkish Education and Culture Association, Pekünlüler Association and Göksünler Association supported the donation campaign and helped raise awareness.