SPINAL Muscular Atrophy(SMA), is a disease that affects motor nerve cells and restricts movement, it is a fatal muscle disease.
The most severe type of this disease, which has four types, is seen in infants. SMA that progresses depending on the growth and development of children, the muscles dissolve over time and children lost their ability to suck, swallow, and walk.
The treatment for SMA is expensive costing millions of pounds.
In Baby Deren, living with his family in Balıkesir, Turkey is one of the youngest SMA patients. Diagnosed with the illness at just 2 months old
Baby Derene is looking towards the drug Zolgensma for treatment, which is approved by the FDA and EMA and is 95 per cent effective. Known as the world’s most expensive drug, Zolgensma is the only chance for children with SMA to survive.
Only 1.5 months remain for Baby Deren to get the treatment period without losing muscle. The family, who started a campaign on social media, set the target date of May 30.
If you wish to find out more or make a donation so Baby Deren can get the life-saving treatments you can do so via the contact and bank details below.
IBAN number Account: Serpil KARAAVCI
Refernece: Deren Mavi
EURO Account IBAN:TR170001500158048019521873
USD(Dolar) Acoount IBAN:TR800001500158048019521903
TL Account IBAN:TR390001500158007313001124
social media accounts: @deren_mavi_yasasin @deren_mavi_international
COntatc – father: Uğur KARAAVCI Tel: +90 530 912 9086 – website www.savederen.org/