SPINAL Muscular Atrophy(SMA), has now been seen encountered frequently on social media recently with a number of Turkish family campaigning for help to the costly treatments.
In short, SMA disease affects motor nerve cells and restricts movement, it is a fatal muscle disease. The most severe type of this disease, which has four types, is seen in infants.
SMA that progresses depending on the growth and development of children, the muscles dissolve over time and children lost their ability to suck, swallow, and walk.
The treatment for SMA is expensive costing millions of pounds.
Three and a half-month-old Deren Mavi, living with his family in Balıkesir, Turkey is one of the youngest SMA patients.
The family started a campaign for Deren Mavi, who was diagnosed with SMA Type-1 when she was 2 months old. His mother Ayşegül Karraci KARAAVCI, who tries to make her voice heard across social media not just in Turkey but across the world has also asked for help from the UK.
“I am a mother struggling for my son to just breathe and drink a drop of water.
I don’t want my son to lose his muscles and waste away in front of my eyes. Please hear our voice, be the voice of my son! “. For more information and anyone who wishs to donate can find out more by following the Instagram account @deren_mavi_yasasin.